渐冻症抗争者蔡磊获评全国自强模范

Core Points - Cai Lei was awarded the title of "National Self-Reliance Model" on the occasion of the 35th National Day for Helping the Disabled, showcasing his resilience against amyotrophic lateral sclerosis (ALS) [1] - He established the "Gradual Recovery Mutual Aid Home" medical big data research platform, linking over ten thousand patients, and created China's first ALS pathological research gene sample bank [1] - In 2024, Cai Lei invested over 40 million yuan in research, with more than 30 million yuan allocated for external research donations, leading to significant breakthroughs in treating the most common gene types among ALS patients [1] Group 1 - Cai Lei's journey with ALS began in 2019 when he was diagnosed at the age of 41, yet he emerged as a hero for many patients [1] - He founded an ALS charity fund and trust, contributing several million yuan to support research and patient care [1] - His recent speech at the AIGC gala highlighted the role of artificial intelligence in discovering new treatment targets and potential drugs for ALS [1] Group 2 - In a social media post, Cai Lei shared his physical condition, noting a significant loss of muscle mass and changes in his appearance due to the disease and hormone treatment [2] - A video shared on May 15 showed Cai Lei interacting with his son using eye-tracking technology, demonstrating his continued engagement with family despite his condition [4][6]