Core Insights - The National Healthcare Security Administration of China has included approximately 100 rare disease medications in the basic medical insurance catalog, covering 42 types of rare diseases [1] - The administration has established a three-tiered protection system consisting of basic medical insurance, critical illness insurance, and medical assistance, while also exploring diverse protection paths such as commercial health insurance and social charity [1] - Through negotiations, the prices of several high-cost rare disease medications have significantly decreased, with the medical insurance fund set to pay 8.6 billion yuan for rare disease drugs in 2024, accounting for 7.7% of total payments during the agreement period [1] - On average, the medical insurance reduces the financial burden for rare disease patients by approximately 5,500 yuan per visit [1] - A dual-channel supply mechanism for newly included rare disease medications has been implemented in hospitals and pharmacies, and rare diseases are now included in the outpatient chronic special disease coverage [1] - The rare disease treatment system in China has been continuously improved, with the average diagnosis time for rare disease patients reduced from 4 years to less than 4 weeks, and medical expenses decreased by 90% [1]
国家医保目录已覆盖42种罕见病 罕见病确诊时间大幅缩短
Yang Shi Xin Wen·2025-09-25 06:13