超100种！我国医保罕见病用药创新高

Group 1 - The new national medical insurance drug list includes over 100 rare disease medications, covering more than 50 disease types, providing hope for more patients [1] - The inclusion of the drug Lenvatinib for Langerhans cell histiocytosis in the insurance list is significant, as it also treats neurofibromatosis type I in children aged 2 and above, expanding access compared to previous coverage [1] - Currently, the insurance covers over 50 rare disease types, but there is still a gap compared to the 207 rare diseases listed, due to some diseases lacking effective treatments and the high costs of certain medications [1] Group 2 - The introduction of commercial insurance for innovative drug coverage includes 19 drugs, such as the expensive medication for neuroblastoma, which previously cost hundreds of thousands of yuan per treatment [2] - The measures taken, including the establishment of diagnostic guidelines for 86 rare diseases and a green channel for drug review and approval, aim to strengthen life protection for rare disease patients [2] - A small program created by a parent of a rare disease patient has facilitated communication among over 5,800 families, showcasing community support and shared experiences [2]