The difficulty of receiving a rare disease diagnosis
CNBC Television·2026-02-03 17:47
Maybe if I go out and just get a coffee or something, I could give her two minutes without knowing this, without knowing that our daughter is really sick and without knowing that our lives have completely changed. Can I just give her that 2 minutes of not knowing what she's about to find out. I just stood there for an extra minute and looked at her until she turned around.And that's when that's when I said, "Look, this is um we have a really sick kid and it's it was terrifying and I we haven't cried like th ...