渐冻症抗争者蔡磊获评全国自强模范

Core Viewpoint - The article highlights the inspiring journey of Cai Lei, a patient with ALS, who has made significant contributions to medical research and patient support despite his deteriorating health condition [1][2]. Group 1: Achievements and Contributions - Cai Lei was awarded the title of "National Self-Reliance Model" on the occasion of the 35th National Day for Assisting the Disabled [1]. - He established the "Gradual Recovery Mutual Aid Home" medical big data research platform, connecting over ten thousand patients [1]. - Cai Lei founded a charity fund and trust for ALS, investing several tens of millions of yuan, and created China's first ALS pathological research gene sample bank [1]. - In 2024, he contributed over 40 million yuan to research, with more than 30 million yuan allocated to external research donations [1]. Group 2: Personal Struggles and Resilience - Despite being diagnosed with ALS in 2019, Cai Lei has remained proactive, utilizing AI technology to enhance his communication abilities and engage in public speaking [1]. - He expressed his determination to fight against the disease, stating, "Life is on a countdown; rather than waiting to die, it is better to fight!" [1]. - Cai Lei's physical condition has significantly declined, with muscle loss and reliance on a breathing machine, yet he continues to inspire others [2][4]. Group 3: Family and Emotional Moments - A recent video showed Cai Lei interacting with his son, using eye control technology to communicate, which highlights the emotional bond and support from his family [6][7]. - The article captures poignant moments of joy and connection between Cai Lei and his son, despite the challenges posed by his illness [6][7].