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Precision isn't precise without us | Dr.Majd Abdulghani | TEDxRiyadh
TEDx Talks· 2025-09-15 15:16
Precision Health & Genetic Data - Precision health has the potential to personalize prevention and treatment based on DNA patterns [9] - Current genetic data and models are overwhelmingly based on people of European ancestry, around 80% of the data, with Arabs making up less than 1% [9] - Lack of diverse genetic data creates borders in care, limiting the precision and effectiveness of medical treatments for underrepresented populations [9][10] - Genetic prediction models are not destiny but patterns, similar to weather forecasts, that can help prepare for potential health risks like diabetes, heart disease, and cancer [12][13] - The accuracy of prediction models decreases when applied to individuals with genetic backgrounds different from the data used to train the model [14] - Using genetics to inform prevention and treatment is already part of medical guidelines and clinical practice, but these are based on limited data [15][16] Saudi Arabia's Potential Role - Saudi Arabia is uniquely positioned to lead the transformation in precision health due to its young, tech-savvy population, leadership, healthcare vision, and integrated healthcare system [17] - Participation in research studies within Saudi Arabia is crucial to include Saudi, Gulf, and Arab data sets in prediction models and clinical decisions [18] - Saudi Arabia's genetic diversity, through its population and the millions of visitors to Mecca, can contribute to making medicine more precise for everyone [19] Call to Action - Breaking the boundary of who gets precision health is not a luxury but a necessity for life-saving decisions and accuracy in medicine [16][17] - The goal is to include the full spectrum of human genetic diversity in data sets to improve medicine for all populations [18][19]
23andMe's founder Anne Wojcicki wins bid for bankrupt DNA testing firm
New York Post· 2025-06-13 21:07
Core Insights - Anne Wojcicki is set to regain control of 23andMe after a $305 million bid from a nonprofit she controls, surpassing Regeneron Pharmaceuticals' previous offer of $256 million in a bankruptcy auction [1][2] - The deal is expected to close soon, pending a court hearing scheduled for June 17 [1] - 23andMe filed for bankruptcy in March due to declining demand and a data breach in 2023 that compromised sensitive customer information [2][6] Company Developments - 23andMe's bankruptcy filing was a result of a significant decline in consumer demand for DNA testing services [2][6] - The company faced legal challenges, with New York and over two dozen other states suing to contest the sale of its customers' private information [3] - TTAM Research Institute, associated with Wojcicki, has committed to upholding 23andMe's existing privacy policies and complying with data protection laws [2] Competitive Landscape - Regeneron Pharmaceuticals initially offered $256 million for 23andMe, which was later outbid by Wojcicki's nonprofit [1][5] - Regeneron expressed willingness to make a new bid but requested a $10 million breakup fee if Wojcicki's bid is accepted [5]