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What Regeneron's Purchase Of 23andMe Means For Your Genetic Privacy
Forbes· 2025-05-21 20:35
Core Viewpoint - Regeneron Pharmaceuticals is acquiring bankrupt genomics firm 23andMe for $256 million, aiming to utilize its extensive DNA database while committing to ethical standards in data privacy [1][2][4]. Company Overview - 23andMe, once valued at $6 billion, filed for bankruptcy in March 2025 due to declining consumer interest and a significant data breach that affected millions [3]. - The acquisition is seen as a strategic move for Regeneron to enhance its genomic-driven drug discovery processes using 23andMe's database of over 15 million DNA samples [2][3]. Data Privacy Commitments - Regeneron has pledged to adhere to 23andMe's existing privacy guidelines and relevant data protection regulations, ensuring that personal data will not be used for research without explicit consent [4][5]. - An independent overseer will evaluate the deal's impact on consumer privacy, with a report due to the bankruptcy court in June [4]. Regulatory and Ethical Concerns - The acquisition has raised concerns among privacy advocates regarding the handling of genetic information, especially in light of past data breaches [4][10]. - U.S. lawmakers are monitoring the situation, worried that genetic data could be sold to entities with different ethical standards [10]. Future Implications - The deal highlights broader questions about ownership and usage of personal genetic data, emphasizing the potential risks associated with sharing such information [13][14]. - As the acquisition moves toward finalization in the third quarter of 2025, the fundamental question remains whether the benefits of contributing to medical research outweigh the privacy risks [14][15].
Regeneron Pharmaceuticals to buy 23andMe for $256M — taking control of genetic data of millions
New York Post· 2025-05-19 16:39
Core Viewpoint - Regeneron Pharmaceuticals is acquiring 23andMe out of bankruptcy for $256 million, gaining access to a significant collection of genetic data and samples from over 15 million customers, which raises privacy concerns [1][4]. Company Acquisition Details - The acquisition includes 23andMe's Personal Genome Service, Total Health and Research Services, and its biobank [1]. - The deal is expected to close in the third quarter of 2025, pending bankruptcy court and regulatory approvals [2]. Privacy and Compliance - Regeneron has committed to adhering to 23andMe's consumer-privacy rules and will collaborate with a court-appointed ombudsman to ensure compliance [3]. - The company aims to protect the dataset with high standards of data privacy and security [3]. Background on 23andMe - 23andMe was once valued at over $6 billion after going public in 2021 but has since dropped to a valuation of approximately $50 million due to various issues, including a $30 million settlement related to a data breach affecting nearly 7 million users [4][5]. - The company filed for bankruptcy in March, prompting the California Attorney General to advise customers to delete their data from 23andMe's database [5][8]. Leadership Changes - Anne Wojcicki, co-founder and CEO of 23andMe, stepped down on the day of the bankruptcy filing following internal conflicts with the board [9]. - All seven independent board members of 23andMe resigned in September, indicating significant governance issues within the company [9].
US regulators tell 23andMe to protect genetic data
TechXplore· 2025-04-01 08:44
Core Points - The US Federal Trade Commission (FTC) has warned 23andMe to protect users' personal information amid its bankruptcy proceedings [1][3] - 23andMe, which offers genetic testing services, filed for bankruptcy and is seeking a buyer after experiencing a significant data breach [2][5] - The FTC emphasized that any sale or transfer of personal information during bankruptcy must adhere to the company's privacy commitments [3][4] Company Overview - 23andMe, a Silicon Valley-based company, went public in 2021 and claims to have 15 million customers [5] - The company has faced declining sales as interest in genetic testing waned and suffered a data breach affecting 6.9 million accounts [5][7] - In response to financial difficulties, 23andMe laid off 40% of its workforce, approximately 200 employees, and suspended research programs [5] Data Breach Details - The data breach compromised sensitive information, including names, sex, birth year, location, photos, health information, and genetic ancestry results [7] - 23andMe has agreed to pay around $37.5 million to settle claims related to the 2023 data breach [5]