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How to support parents after the loss of a child | Laura Gould, MSc, MA, PT | TEDxNYU Langone Health
TEDx Talks· 2025-12-19 18:00
Research Focus - The research focuses on Sudden Unexplained Death in Childhood (SUDC), a category of deaths that are not yet understood [16] - SUDC affects at least 400 families in the US every year, involving children between 1 and 18 years old [12] - Unexplained deaths are the fourth most common type of death in children ages 1 to 4 [14] Research Progress - The research has identified genetic changes that altered heart and brain functioning in some deaths [21] - Research indicates that unexplained child deaths are likely undercounted due to variations in death investigations [21] - Crib camera video recordings show that some deaths are related to seizures [22] Research Methods - The research involves collecting data from parents through questionnaires [19] - The SUDC registry and research collaborative was created to bring together parents, researchers, and clinicians [20] Policy and Advocacy - Sudden unexplained deaths in childhood were recognized in US law in 2014 [17] - The research implores policymakers to make changes to recognize these children publicly, ensure resources for quality investigations, and fund research [24]