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Rituales de un cuidador que necesita ser cuidado | Marcela Quintero | TEDxBogotáSalon
TEDx Talks· 2025-08-14 14:42
Rare Diseases & Disabilities Awareness - The speech emphasizes the prevalence of rare diseases, noting that 1 in 745 people worldwide have Down syndrome [1] - In Colombia, 126,000 people have rare diseases, highlighting the significant impact on families and individuals [1] - The speaker's personal experience with her daughter's ultra-rare disease (14 Q12 to 13.3% microdeletion) underscores the challenges of diagnosis and treatment [1] Overcoming Fear & Promoting Empowerment - The speech highlights the importance of parental advocacy and persistence in seeking diagnoses and care for children with disabilities [1][2] - The speaker emphasizes the importance of self-care and positive habits in managing personal challenges and disabilities [9][10][11][12][13][14][15] - The speech encourages listeners to embrace their differences and turn fear into motivation [3][8][15] Family & Support Systems - The speaker emphasizes the importance of family support in navigating challenges related to disability and illness [3][6][7] - The speaker's son's desire to document their family's story highlights the impact of disability on siblings and the potential for positive narratives [3][7][8]