“罕见病叙事关AI（爱）计划”收官，故事展播平台今日上线

Core Insights - The "Rare Disease AI Narrative Broadcasting Platform" was officially launched on December 4, coinciding with the International Day of Persons with Disabilities on December 3, to raise awareness for rare disease patients [1][2] - The initiative, led by the Beijing Pain Challenge Public Welfare Foundation, aims to leverage AI tools to amplify the voices of rare disease communities and foster understanding and support from society [1][3] Group 1 - The "Rare Disease Narrative and AI (Love) Plan" was initiated in September, focusing on storytelling and AI to create a multidimensional communication platform for rare disease patients [1][2] - The offline activities took place in Beijing, Jinan, and Chengdu, featuring medical theme sharing, patient narratives, and caregiver support [1][2] - The "Rare Bear Chat with You" AI dialogue collaboration platform, developed by a research team from the Chinese University of Hong Kong, is the first AI tool designed specifically for rare disease communities [2] Group 2 - The platform assists patients in documenting their disease journeys, caregiving experiences, and emotional needs, transforming these stories into shareable narratives [2] - The collaborative storytelling platform will feature narratives created by patients in partnership with the AI, published across various social media channels [2] - The Beijing Pain Challenge Public Welfare Foundation plans to continue integrating narrative and AI technology to empower patients to become active storytellers [3]