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口腔颌面外科专家陈亦阳:唇腭裂没那么可怕,规范治疗后可与常人无异
Xin Lang Cai Jing· 2026-01-25 14:11
陈亦阳向记者介绍称,唇腭裂并不是单一疾病,在具体患者中,有人只有唇裂,有人只有腭裂,有人则 唇裂和腭裂都有。这三种情况都被统称为"唇腭裂"。 每经记者|王 帆 许立波 每经编辑|张益铭 近日,北京嫣然天使儿童医院(以下简称嫣然医院)陷入"欠租风波",引发社会热议。嫣然医院风波的 背后,不仅揭示了公益医院面临的生存困境,也将"兔唇"患者这样一群常常遭遇隐形歧视的群体,再次 推至公众视野中央。 围绕这一先天性疾病,误解与偏见仍然存在,当一份产前超声报告上赫然出现"唇腭裂"的字样,一些家 庭往往会在瞬间被恐惧所裹挟。对不少准父母而言,这意味着孩子存在"严重畸形",他们担心孩子未来 一生会受影响,甚至可能会在孕中后期仓促做出终止妊娠的决定。 然而,在医学技术持续进步的今天,唇腭裂早已不再是无法挽回的伤口。在接受《每日经济新闻》记者 专访时,广州医科大学附属妇女儿童医疗中心(以下简称广州妇儿中心)口腔颌面外科专科主任陈亦阳 表示,公众对唇腭裂的过度恐惧需要纠偏,实际上,绝大多数的唇腭裂在医学上被归类为良性畸形。只 要不合并严重的中枢神经系统或心脏等重大结构异常,通过规范、系统的序列治疗,患儿无论在外观、 语言功能,还是 ...
李亚鹏拼命要救的唇腭裂患者们:我很渴望和人正常说话
凤凰网财经· 2026-01-24 09:07
Core Viewpoint - The article highlights the challenges faced by families with children suffering from cleft lip and palate, emphasizing the importance of free medical services provided by the Yanyuan Hospital, which is currently facing financial difficulties and potential closure due to unpaid rent and operational challenges [30][40]. Group 1: Patient Experiences - Huang Zhenhua, a truck driver, traveled over 4,000 kilometers to seek treatment for his daughter suffering from severe cleft lip and palate, highlighting the lengths families go to for medical care [3][4]. - The hospital has performed over 11,000 cleft lip surgeries since 2012, with approximately 7,000 of these being free for impoverished families [11]. - The article describes the emotional and physical challenges faced by parents, including the stigma and care required for children with cleft conditions, as well as the financial burden of treatments [24][25]. Group 2: Hospital Operations - Yanyuan Hospital is currently in a financial crisis, with a reported debt of 260 million yuan since 2022, leading to concerns about its operational continuity [30][40]. - Despite the financial issues, the hospital continues to provide essential services, with around 200 cleft lip patients scheduled for surgery during the winter break, performing an average of 4-5 surgeries daily [34][36]. - The hospital's business model, which aimed to fund free surgeries through high-end services, has not been successful, leading to a decline in patient volume and charitable donations post-pandemic [40][41]. Group 3: Community Support and Future Plans - Community support is evident, with citizens donating money to help the hospital continue its operations, reflecting the public's recognition of the hospital's importance [31][39]. - Families like Meng Yihan's are committed to supporting the hospital, with some parents becoming regular donors to ensure its survival [39]. - The hospital is actively seeking new premises and has plans to relocate, although this process is complicated and could disrupt ongoing treatments for many patients [41].