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Less Paperwork, More Connected Care: Humana and Epic Advance Data Sharing
Businesswire· 2025-11-18 12:50
Core Insights - Humana and Epic are enhancing data sharing through digital innovations that align with federal interoperability priorities and aim to improve patient experience [1] Group 1 - The collaboration focuses on advancing data sharing capabilities [1] - The initiatives are designed to meet federal interoperability standards [1] - The improvements are expected to enhance the overall patient experience [1]
What if your health data could save a life? | Ashley Van Zeeland | TEDxSanDiegoWomen
TEDx Talks· 2025-10-24 17:00
Collaboration in Biomedical Science - The biomedical science industry is shifting from individual research to deep, diverse, and fast-moving collaboration [2][4] - Since 2020, nearly all Nobel Prizes in the sciences have been awarded to collaborators, highlighting the importance of teamwork in groundbreaking discoveries [3] - Patient data, including health data and genetic information, is essential for driving biomedical innovations [5] Personalized Medicine and Data Utilization - Access to genetic information from thousands of patients and volunteers is crucial for identifying disease-causing mutations [13] - Large-scale population studies, like the NIH's "All of Us" study, are identifying new biomarkers and genetics for diseases [5] - Open data sharing platforms, such as "PatientsLikeMe," enable individuals to contribute their information to research [5] Technological Advancements and Data Analysis - Tools like DNA sequencing, electronic medical records, and wearables generate massive amounts of biological information requiring large-scale population involvement for analysis [16][18] - The ability to analyze vast datasets allows for rapid diagnosis and personalized treatment, exemplified by the case of a baby named KJ who received a personalized gene editing therapy within six months [9][10][11][15] Ethical Considerations and Participation - Laws and protections are in place to guard against genetic discrimination, ensuring ethical data usage [21] - Individuals are invited to participate in research, shaping the ethics and contributing ideas on data usage and communication [21][22] - Numerous population-scale research programs worldwide offer opportunities for participation in biomedical research [22]
The importance of women’s health data | Sheena Franklin | TEDxFoggyBottom
TEDx Talks· 2025-08-06 15:25
Women's Health Data & Research - Less than 10% of funding goes towards women's health research and development [5] - 50-75% of women are more likely to experience an adverse drug reaction as medications are still largely designed around a male physiology [9] - Only 4% of pharmaceutical pipelines focus on female-only conditions despite women making up over 50% of the population [9] - The National Institutes of Health (NIH) 'All of Us' study has gathered data from almost 1 million participants [14] Healthcare System & Data Sharing - The healthcare system has never fully accounted for women, leading to a critical lack of women's health data from clinical trials, medical records, and research studies [4][5] - Sharing health data empowers women, providing doctors with a deeper understanding of their health in real-time and potentially leading to treatments designed around a woman's unique biology [7][8][10] - De-identifying health data and combining it with data from other women ensures privacy while creating a powerful resource for tackling challenges in women's health [12][13] Call to Action - Individuals are encouraged to use telemedicine platforms or wearables designed with women in mind, join patient registries, and participate in clinical trials to advance women's health [20][21][23] - Despite the fact that health data is already being used and shared from various sources, there is still not enough high-quality women's health data [22][23]