Temperature 44 degrees. Humidity. Good to see you.Thanks. I know what it's like when you put anything out there, you're going to get blowback. No matter what the story is.You're going to get people who are haters. And I'm fine with that. I've got a pretty thick skin, but the idea of putting my daughter out there was not a thrilling one.Struggling with the problem of traffic today. I've really tried to keep the personal life and the work life pretty separate because it's hard to operate. This was not even so ...

I've got a pretty thick skin, but the idea of putting my daughter out there was not a thrilling one. >> I'm Becky Quick. I'm an morning anchor at CNBC Squatbox and I am the mom of Kaylee Quail.She has a rare genetic disease. >> Happy birthday. >> It was the first birthday party.There was something so wrong with it. She couldn't blow out the candle. You start rolling it back and it's like if she can just walk, >> if she can just talk. Uhoh, >> if she can just find a friend.Honey, like we got to we got to go. ...

Well, gosh, if this is the last thing she sees, do I want to be looking at her and smiling. Or do I want her to know exactly how I feel and that I'm terrified and crying. O say can you see There's this purity that isn't the disease.It's the person. This isn't normal. And this isn't pain-free.I'm Becky Quick. This is the path from CNBC Cures, a podcast series about the people, the struggles, and the science of rare disease. If you listen to or watched our first episode.Thank you. Thank you so much for openin ...