Well, gosh, if this is the last thing she sees, do I want to be looking at her and smiling. Or do I want her to know exactly how I feel and that I'm terrified and crying. O say can you see There's this purity that isn't the disease.It's the person. This isn't normal. And this isn't pain-free.I'm Becky Quick. This is the path from CNBC Cures, a podcast series about the people, the struggles, and the science of rare disease. If you listen to or watched our first episode.Thank you. Thank you so much for openin ...