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罕见病病友乐队:我们“从不罕见”
Xin Lang Cai Jing· 2026-02-26 17:41
(来源:千龙网) "希望大家今天都能够留下些什么,带走些什么,记住些什么。至少记住我们这群不凡的生命,记住我们'从不罕见'。"坐在轮椅上的崔莹在歌唱前这样告诉 观众。 这是一支主要由罕见病患者组成的乐队,2025年12月28日晚,他们穿着印有"我们都有病"五个字的黑色短袖,在进行一场十周年演出。 2025年12月28日,8772乐队现任成员合影。 2025年12月28日晚,8772乐队十周年演唱会现场。 生命的韧性 8772乐队的名字取自"病痛挑战"拼音首字母的变形,首任队长王奕鸥曾调侃,加入这支乐队的唯一条件就是得"有病"。 崔莹是乐队主唱兼吉他手,患有成骨不全症,这种病的患者也被叫作"瓷娃娃"。崔莹小时候经常骨折,如今需要依靠轮椅出行。成骨不全症患者的手指较 软,力气比常人小,体形也较小,吉他对崔莹而言有点过于"沉重"。但就是她先发起了号召:"我们组建一个罕见病乐队吧!" 同样患有成骨不全症的王奕鸥是最早加入的。随后,越来越多的罕见病病友加入其中。只有王奕鸥有一些音乐基础,其他人都是跟着天空乐队队长马歌从零 起步学习乐器。直到2015年10月31日首次演出的当天,有7人在台表演。 "小时候的日记上写过:要 ...
被夸“头脑天花板级别”的新晋顶流,没点文化还真不敢爱
Sou Hu Cai Jing· 2025-09-25 09:35
Core Insights - The rise of educational content creators like @清年阁 has transformed traditional learning into engaging and accessible formats, attracting millions of viewers and reshaping perceptions of academic excellence [1][2][9] - These creators leverage their elite academic backgrounds to provide relatable and practical advice, breaking stereotypes associated with high achievers and making knowledge more approachable [4][6][11] Group 1: Educational Content Creation - @清年阁 has gained significant popularity, amassing over 4 million followers by offering relatable educational content that resonates with a wide audience, from students to working adults [1][2] - The creators focus on demystifying complex subjects, turning them into engaging narratives that encourage viewers to learn and interact, thus enhancing their cultural and intellectual engagement [2][4][9] - The content produced is characterized by high completion rates and a unique blend of humor and education, making learning feel like an enjoyable experience rather than a chore [2][4][11] Group 2: Community Engagement and Impact - The comment sections of these educational accounts have become vibrant discussion forums, showcasing a high level of cultural engagement among viewers, who actively participate in discussions and share insights [2][9] - Creators like 张博宇 emphasize the importance of community feedback, which helps refine their content and fosters a sense of connection with their audience, ultimately enhancing the educational experience [9][35] - The interaction between creators and their audience has led to a supportive environment where viewers feel encouraged to pursue their academic goals, reflecting a shift towards more inclusive educational practices [38][40] Group 3: Breaking Stereotypes - The creators actively challenge the stereotype of the aloof "academic elite" by presenting themselves as approachable and relatable individuals, thus redefining what it means to be a high achiever [6][11][28] - By showcasing their personal stories and struggles, these creators humanize the academic experience, making it more relatable to a broader audience [17][22][32] - The content produced not only serves educational purposes but also aims to inspire and motivate viewers, demonstrating that success is attainable through hard work and creativity [25][36][43]