Core Viewpoint - The event "1 in 20,000 Encounter - Public Welfare Science Popularization Art Exhibition on Rare Disease TGCT" aims to raise awareness about tenosynovial giant cell tumor (TGCT), a rare disease affecting joints, through art and public engagement [1][2][3] Group 1: Disease Awareness and Impact - TGCT has an incidence rate of 1 in 20,000 and is included in the national rare disease directory, with approximately 60,000 new patients diagnosed annually in China [1][3] - Patients often face misdiagnosis and delayed diagnosis, taking an average of 1 to 2 years from first visit to confirmation of the disease [2] - The exhibition features over 100 artworks that express the real-life experiences of TGCT patients, highlighting their daily struggles with symptoms like joint swelling and pain [1][2] Group 2: Collaborative Efforts in Rare Disease Management - The event is organized by multiple stakeholders, including the China Rare Disease Alliance and the Beijing Rare Disease Diagnosis and Treatment and Guarantee Society, emphasizing the need for collaboration in rare disease management [1][4] - Experts call for increased public awareness and education on rare diseases, urging healthcare professionals to engage in outreach and communication with patients [2] - The Chinese government is focusing on building a support system for rare diseases, integrating drug supply and patient management into healthcare policies [3] Group 3: Future Directions and Goals - The ultimate goal of rare disease prevention and treatment is to ensure that every "1 in 20,000" patient does not feel isolated [3] - The exhibition serves as a platform to bridge gaps in understanding and to foster dialogue about rare diseases, aiming to improve both treatment pathways and societal empathy [3][4]