Group 1 - The 19th International Rare Disease Day on February 28 aims to raise awareness and understanding of various rare diseases, including myasthenia gravis, which is a chronic autoimmune disease affecting daily life and can be life-threatening during acute exacerbations [1] - Myasthenia gravis is categorized into ocular and generalized types, with the generalized form included in the first batch of rare diseases recognized by the state in 2018 [1] - Standardized treatment is emphasized as essential, with a focus on achieving dual targets: controlling symptoms and minimizing drug side effects to facilitate a quicker return to normal life [1][4] Group 2 - Post-acute phase, patients are at high risk of relapse within a year after discharge, and self-discontinuation of medication can be dangerous due to lingering immune dysregulation [2] - It is recommended that patients undergo consolidation therapy under medical guidance, such as using FcRn antagonists like efgartigimod for six months to reduce relapse risk [2] - Each patient's condition is unique, and treatment plans must be followed as prescribed, avoiding self-medication [2] Group 3 - Patients can monitor their condition at home using the MG-ADL assessment, which evaluates daily abilities related to speaking, chewing, swallowing, and breathing [3] - A lower MG-ADL score indicates better symptom control, with scores above 2 points from previous assessments suggesting potential disease fluctuations that require medical consultation [3] Group 4 - The treatment goal for myasthenia gravis is to achieve "dual targets": symptom control and side effect management, with a specific focus on reducing daily steroid doses to a safe range of 5 to 10 mg [4] - Research indicates that for every one-point increase in MG-ADL score, the risk of disease worsening increases by 13%, and maintaining steroid doses above 10 mg can lead to higher adverse reaction rates [4] - Non-acute phase patients are encouraged to seek better treatment options under medical supervision to improve their quality of life and regain control over their lives [4]