Core Insights - The education opportunities for patients with osteogenesis imperfecta, commonly referred to as "porcelain dolls," have significantly improved, but challenges remain to be addressed [1][3][5] Group 1: Education and Social Integration - The 2025 survey report on the living conditions of osteogenesis imperfecta patients highlights a notable improvement in educational opportunities, with school enrollment rates for eligible children rising from 93% in 2017 to 99% [7] - The coverage of accessible toilets in schools increased from 34% to 62%, and the proportion of children attending school independently rose from 6% to 34% [7] - The dropout rate has decreased from 48% to 41%, indicating that more patients are completing compulsory education and pursuing higher education [7] Group 2: Employment and Economic Challenges - The employment rate among the osteogenesis imperfecta community remains low, with only about 45% of respondents having part-time or full-time jobs [9] - Although medical treatment does not significantly impact their work, physical disabilities lead to longer travel times for daily commutes [9] - There is a growing need for job environments and positions that accommodate their physical conditions to enhance employability [9] Group 3: Aging and Future Support - The aging population within the osteogenesis imperfecta community is becoming a concern, with some individuals over 40 beginning to plan for retirement [9] - Most patients prefer home-based care, while some are interested in integrated medical and nursing care to address health and skeletal issues in old age [9] - Experts at the conference emphasized the ongoing social challenges faced by this community, including economic burdens, daily rehabilitation, and the need for social support [11]