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21书评︱安宁疗护:让临终者决定最后的尊严
Core Insights - The article discusses the challenges and compromises in hospice care in China, emphasizing the struggle for dignity at the end of life within an imperfect system [1][7] - It highlights the increasing aging population in China and the associated healthcare challenges, particularly in end-of-life care [2][6] Group 1: Aging Population and Healthcare Challenges - China is experiencing an unprecedented aging era, characterized by a rapid increase in the elderly population and a rising average life expectancy [2] - As of 2018, the average life expectancy in China was 77 years, but the average healthy life expectancy was only 68.7 years, indicating that elderly individuals spend an average of 8.3 years living with illness [2] - The prevalence of chronic diseases such as cancer, diabetes, and neurological disorders is increasing, raising questions about health and medical care in the context of aging [2] Group 2: Hospice Care and Dignity - The concepts of "hospice care" and "end-of-life care" aim to help the elderly accept their reality and achieve a dignified death [5] - In the U.S., patients can choose hospice care if two physicians determine they have less than six months to live, allowing them to forgo curative treatments [5] - Recent legislative efforts in China, such as the Shenzhen Medical Regulations, have begun to address the need for advance directives, marking a step towards ensuring dignity in end-of-life care [6] Group 3: Cultural and Systemic Challenges - The practice of hospice care in China predates the establishment of formal systems for ensuring patients' rights to self-determination at the end of life [7] - The article raises critical questions about how patients perceive and advocate for their dignity in the current cultural and systemic context [7] - It emphasizes the need for a deeper understanding of the complexities and compromises involved in providing dignified end-of-life care, reflecting on the various personal needs and choices that arise in this context [8]