Group 1 - The core viewpoint of the news is the launch of two rare disease insurance products in Beijing, marking a significant step in establishing a multi-tiered保障体系 for rare diseases in the region [1][2] - The two insurance products, "Hanbao Guardian" and "Good Pregnancy Heart Link," are designed to provide the first health保障 for newborns, with a focus on rare diseases [1] - The initial list of covered medications includes 14 overseas specialty drugs and 8 domestic specialty drugs, allowing eligible pregnant women to receive both insurance products for free, thus enhancing the保障体系's inclusivity [1] Group 2 - The innovative model of "government guidance, enterprise underwriting, and social participation" aims to combine commercial insurance with social公益, thereby increasing the effectiveness of保障 for rare diseases [2] - This initiative is expected to provide replicable and promotable experiences for the construction of a multi-tiered保障体系 for rare diseases across the country [2]

转自：北京日报客户端 9月24日，北京市药监局、市卫健委、市医保局、北京海关、顺义区政府及首都机场临空经济区管委会 共同组织召开北京罕见病药品保障先行区联席机制第四次工作会。会议重点公布了两款罕见病公益保险 产品，是全国范围内首次以公益赠险形式为新生儿提供"第一份健康保障"，标志着北京在构建罕见病多 层次保障体系方面取得又一项新的突破。 记者从会上了解到，依托天竺先行区已获批的罕见病临床急需药品，首都机场临空经济区管委会携手人 保财险北京分公司和北京人寿创新开发了"罕宝守护""好孕心连新"2款保险产品，将保险保障前移至新 生儿阶段，向全国新生儿送上第一份健康保障。首期保险药品清单包括14种海外特药、8种国内特药， 每名符合条件的孕产妇可免费领取2款保险产品，实现"一个清单、双份保障"。 参会孕妈妈代表陈女士表示："这份保险给予我们一份'意料之外的安心'。作为准妈妈，难免会对未知 情况有所担忧，之前我也了解过不少商业保险，但专门覆盖新生儿罕见病的保障还是第一次遇到。它不 仅在经济上多了一层防护，更极大缓解了我们精神上的焦虑。" 今年6月，北京市医保局已将天竺先行区5款海外特药纳入北京普惠健康保，本次公益保险的发 ...