孤独症
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一所“孤独症学校”,走过20年
Xin Lang Cai Jing· 2025-12-27 16:36
智通财经资深记者 邹佳雯 海报设计 白浪 "爱好"20 "杨老师,好雨……""知时节。""杨老师,夜半钟声……""到客船。""杨老师,摔玻璃杯。""不能摔玻璃 杯,要乖哦。" 阳阳听到这儿笑了,26岁的他个子大大的,稳坐在操场一角。杨晓燕每天巡园,阳阳就每天把几个问题 来回问一遍。杨晓燕也不恼,他问几遍,她就答几遍。 阳阳会真的摔玻璃杯吗?"以前会摔东西,现在就是说一说,这或许是他博取关注的方式。"杨晓燕解 释,"但这些不当行为,可以通过科学的干预训练消退。" 这是上海爱好儿童康复培训中心(以下简称"爱好")的寻常一幕,之所以叫"爱好",取自"心中有爱, 所以会好"。杨晓燕,是它的创始人。 2005年,杨晓燕创立了这家非营利性社会服务机构。二十年来,中心迎来送往了5000多名孤独症谱系障 碍人士,其中不少是孩子。孤独症,也常被人称为自闭症,是一种先天性的神经发育障碍,个体差异呈 现千差万别,目前没有彻底"治愈"的方法,病因至今成迷,只能通过科学干预,不断提升患者的社交、 沟通和生活能力。 周年无人机灯光秀。爱好,即"因为有爱 所以会好"。 本文图片除标注外均为 受访者供图 "爱好"的孩子程度有轻有重,小龄的孩 ...
新研究:孕期甲状腺激素失衡或增加孩子患孤独症风险
Xin Hua Wang· 2025-12-07 05:00
新研究对2011年至2017年间以色列南部一家医疗中心出生的超过5.1万名婴儿进行长期追踪,并参考实 验室检测的促甲状腺激素(TSH)和游离甲状腺素(FT4)水平进行精确评估。研究发现,母亲孕期甲 状腺激素失衡持续时间越长,其子女患孤独症的风险越高。 新华社耶路撒冷12月6日电(记者王卓伦 冯国芮)以色列内盖夫本-古里安大学研究团队一项研究发 现,母亲孕期持续性甲状腺激素失衡可能显著增加日后孩子罹患孤独症谱系障碍的风险。研究成果已于 近日发表在学术期刊《临床内分泌与代谢》上。 该校发布公报说,母体甲状腺激素对胎儿神经发育至关重要。在妊娠期尤其是早孕期,胎儿大脑发育高 度依赖通过胎盘转运的母体甲状腺激素。此前研究已表明母亲妊娠期甲状腺功能异常与儿童认知功能下 降、语言发育迟缓等神经发育问题存在关联,但关于母亲孕期甲状腺功能失调与孩子出生后患孤独症风 险的关系仍存在争议。 研究人员表示,在整个孕期进行常规甲状腺功能监测和及时调整治疗十分重要。对于已确诊患甲状腺疾 病的孕妇,只要通过药物治疗使激素水平保持稳定,就不必过度担忧。 研究人员指出,虽然该研究存在一定局限性,但研究结果与现有临床指南相符,与孕期常规筛查甲状 ...
患了阿尔茨海默病的妈妈去世,我才真正和她和解
3 6 Ke· 2025-10-21 03:24
Core Insights - The article narrates the emotional journey of a caregiver, Zhu Maomao, who reflects on her experiences caring for her mother suffering from bipolar disorder and Alzheimer's disease, highlighting the complexities of their relationship and the impact of illness on family dynamics [1][2][4][5][7][19]. Group 1: Caregiver Experience - Zhu Maomao describes her role as a full-time mother and caregiver, emphasizing the challenges faced while raising her daughter, who has autism, alongside her mother's mental health struggles [4][5]. - The narrative reveals the emotional toll of caregiving, including feelings of helplessness and the transformation of the mother-daughter relationship as they navigate illness together [7][19]. - Zhu Maomao's reflections on her mother's decline illustrate the gradual loss of independence and the caregiver's evolving role, leading to a reversal of traditional family roles [19][20]. Group 2: Mother's Illness Journey - The article details the progression of the mother's bipolar disorder and subsequent diagnosis of early-onset Alzheimer's disease, including specific symptoms and changes in behavior over time [10][11][15]. - It highlights the mother's emotional resilience and moments of clarity amidst her illness, showcasing her attempts to maintain a connection with her family, particularly her granddaughter [5][15][25]. - The narrative also discusses the impact of medication on the mother's health and quality of life, including side effects and the challenges of managing her care [14][20]. Group 3: Family Dynamics - The relationship between Zhu Maomao and her mother is characterized by a blend of love, frustration, and a search for understanding, as they both cope with their respective mental health issues [31][32]. - The article touches on the societal perceptions of success and failure, contrasting the mother's life experiences with conventional standards, ultimately recognizing her wisdom and resilience as invaluable [31][32]. - The story concludes with reflections on loss and the complexities of familial love, emphasizing the importance of understanding and appreciating the sacrifices made by caregivers [34][35].
世卫组织:尚无确凿证据表明对乙酰氨基酚与孤独症有关联
Xin Hua Wang· 2025-09-25 08:30
Group 1 - The World Health Organization (WHO) stated that there is currently no conclusive scientific evidence linking the use of acetaminophen by pregnant women to an increased risk of autism in their children [1] - WHO highlighted that nearly 62 million people globally are affected by autism spectrum disorders, which are a group of diverse conditions related to brain development [1] - Extensive research over the past decade has not established a fixed association between the use of acetaminophen during pregnancy and autism in children [1] Group 2 - WHO confirmed that there is substantial reliable evidence indicating that childhood vaccines do not cause autism, supported by large-scale, high-quality studies conducted in many countries [2] - Independent experts advising WHO since 1999 have repeatedly affirmed that all vaccines, including those containing thimerosal or aluminum, do not lead to autism or other developmental disorders [2]
双相母亲养如何育孤独症女儿?她坦诚写下人生的暗与光
Di Yi Cai Jing· 2025-06-16 10:16
Core Viewpoint - The book "Tree: My Daughter Comes from the Stars" by Zhu Miaomiao reflects the journey of a mother raising a daughter diagnosed with autism, highlighting the emotional struggles and resilience of both the mother and child [1][3][19] Group 1: Personal Struggles and Growth - Zhu Miaomiao spent a year accepting her daughter's autism diagnosis and another year writing about her experiences, revealing both the pain and joy of motherhood [1][3] - The author faced significant mental health challenges, including bipolar disorder and depression, while caring for her daughter, which she candidly discusses in her writing [1][4][19] - The book illustrates the dual journey of healing and growth for both the mother and daughter, emphasizing their interdependent relationship [1][7][19] Group 2: Societal Context and Challenges - The book addresses broader societal issues regarding autism, including the integration of autistic children into mainstream education and the challenges faced by families [9][10][12] - Statistics indicate that there are over 13 million autism patients in China, with a growing incidence rate, highlighting the urgent need for societal awareness and support [9][10] - The narrative also touches on the economic and emotional burdens placed on families, particularly mothers, who often take on the role of primary caregivers [10][12] Group 3: Community and Support - Zhu Miaomiao became involved in autism advocacy and support groups, finding solace and strength through shared experiences with other families [7][10] - The book emphasizes the importance of community support and the positive impact of early intervention for autistic children [7][10] - The author’s experiences in integrating her daughter into a regular school environment showcase the potential for acceptance and understanding among peers [9][10][19]
我的女儿来自星星
Hu Xiu· 2025-06-05 11:45
Core Viewpoint - The article narrates the journey of a mother raising her daughter, who has been diagnosed with autism, highlighting the challenges and insights gained through this experience [1][4][27]. Group 1: Diagnosis and Initial Reactions - The daughter, referred to as "Shu Er," was diagnosed with mild autism at the age of five, which was a turning point for the family, leading to feelings of despair and a sense of loss regarding expectations for a "normal" child [8][9]. - The mother initially struggled with the diagnosis, feeling as though she received a "death sentence" for her child's future, filled with negative thoughts about her daughter's capabilities [8][9]. Group 2: Parenting Journey and Support - The mother dedicated a year to understanding and accepting her daughter's condition, engaging with autism support organizations and rehabilitation centers [2][3]. - She actively participated in her daughter's education, attending school with her and observing the dynamics of her interactions with peers, which provided valuable insights into the world of children [2][17]. Group 3: Social Integration and Education - The presence of Shu Er in a regular classroom setting allowed for a unique learning experience for both her and her classmates, fostering an environment of acceptance and understanding of differences [10][19]. - Other children in the class learned empathy and social skills through their interactions with Shu Er, demonstrating the benefits of inclusive education [10][19]. Group 4: Personal Growth and Acceptance - Over time, the mother shifted her perspective, recognizing the value of her daughter as an individual, separate from societal expectations of normalcy [9][23]. - The mother learned to embrace the uniqueness of her daughter's experiences, leading to a more peaceful and accepting family dynamic [23][24]. Group 5: Broader Context of Autism - According to a report from the China Disabled Persons' Federation, there are over 13 million individuals with autism in China, with a growing incidence rate, highlighting the importance of awareness and support for families affected by autism [23].
让更多人认识并正视孤独症
Zhong Guo Qing Nian Bao· 2025-05-27 01:07
Group 1 - The core issue of autism diagnosis and intervention is highlighted, emphasizing the importance of early detection and treatment, ideally before the age of three [1][3] - Parents often face significant financial burdens when seeking treatment for their autistic children, with one parent mentioning a cost of 300,000 yuan for two years of intervention [1] - There is a growing acceptance of inclusive education for autistic children in mainstream schools, with many parents expressing a willingness to support this integration as long as it does not disrupt normal learning [2] Group 2 - Despite increased awareness, some parents still hesitate to apply for disability certificates for their autistic children, often due to misconceptions about the condition [3] - The need for enhanced public education on autism is emphasized, with recommendations for more comprehensive outreach to help parents recognize and address autism symptoms early [3] - Recent government initiatives, such as the 2022 guidelines for autism screening and intervention, aim to improve early detection and support for affected children [3]
普教校门打开:孤独症机构去向何方?
21世纪经济报道· 2025-04-14 05:54
Core Viewpoint - The situation for children with autism is improving as mainstream schools open their doors, providing families with more options, but challenges remain in integrating these children into public educational institutions [2][3][4]. Group 1: Current State of Autism Education - The prevalence of autism in China is approximately 0.7%, with over 10 million individuals affected, including 3 to 5 million children aged 0-14 [4]. - There is a significant shortage of qualified rehabilitation teachers for autism, with only about 1000 certified professionals available to serve approximately 2500 children each [5][6]. - The survival of autism institutions is critical as they play a key role in the rehabilitation ecosystem for affected children [6]. Group 2: Challenges Faced by Autism Institutions - As public schools become more accessible, many parents prefer enrolling their children in these institutions, leading to enrollment difficulties for autism-specific institutions [3][14]. - The financial burden of rehabilitation is substantial for families, with many parents sacrificing their jobs to care for their children, and some families going into debt for treatment [17][18]. - Institutions are facing a price war, leading to reduced tuition fees, which may compromise the quality of education and rehabilitation services [21]. Group 3: Innovations and Future Directions - The introduction of "shadow teachers" aims to assist children with autism in mainstream schools, addressing the gap in specialized teacher training and resources [24]. - Despite the challenges, the founder of an autism institution remains hopeful and committed to improving the lives of children with autism, emphasizing the importance of continued support and development in this field [25][26].